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Dawn Meyers
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Dawn Meyers   My Press Releases

Caring For A Person With Autism

Published on 7/20/2012
For additional information  Click Here

Caring for a person with Autism is not as easy as it looks. I am caring for my 11 year old son. Not to many people even know what Autism means unless you say the movie Rain Man. But that still doesn't tell you exactly what Autism is. Autism is just a name for a group of people that share similar problems with how they see,taste,smell and touch which cause them to react differently than others to everyday things that we do with ease. Everyone one of them is different. It's like a fingerprint. You can never find one of them the same as another. So if this is true I want to know why some people just think they know everything about about my kid just because they went to school to learn about it. And the random people that will tell you how to fix your kid. When they have no clue themselves. Even if they do have a child with Autism mine is different than theirs. First when I learned my boy had Autism he was about 15 months old. We did not get it diagnosed by a neurologist until he was 2. The way we knew something was going on was the different way he did things. First off when he was 2 days old he sat up in my arms and picked up his own pacifier and put it in his mouth. I told the doctor about this and said well why would you complain about that. He's a strong boy. And boy was he right. He never enjoyed being held and would always squirm away. I always had to lay him next to me to feed him. Then my boy sat straight up one day without a struggle and earlier than he should have. It actually startled me because it looked like he was possessed. He never crawled and went right to walking then he started crawling backwards. He also would stand in front of the TV or something that made him excited and he would push up and down on his toes and flap his arms. Also would make really cute noises. We did think this was just the cutest thing ever. He was saying a few words then he stopped. It seemed like he might not have been hearing right also. You could come up behind him and slap your hands together and he would not budge. He also would not answer to his name anymore. At 3 years old he was on a bus and on his way to school. That's what happens when you are 3 and you have Autism. I was very nervous sending him off to school but I had no choice. He had many different things about him along with the others I have already listed. He never liked to wear his close or his shoes and would take them off often on the bus and at school. He also bit people. Was a very picky eater and still is. Eats finger foods high in carbs. Strange thing is he ate everything when he was around 12 and 14 months. Even creamed spinach. Now he will gag and puke if you put it in front of him. He was always in his own world, is what they call it. He is with you and has no idea you are there. He holds his ears and shuts down when he is over stimulated. He used to scream so loud he seemed like he would break your windows. Fascinated with different things like ceiling fans and light switches. Also pushing every button he sees. Don't let him in the White House. He is fascinated now with water when he used to just fear the bath tub and would kick scream and bite you if you tried to give him a bath. Now he will run to a river, lake or pool and fight you to get in it. Lucky for us we always won. He also still won't speak. Things were easier on him when he was younger but as he grew older he has gotten really frustrated. The reason this is is because the Autism education system has failed him. His teachers and his nurses would always have their own educated guess as to what he is upset about and it always involved a trip to the doctors for now reason at all. He only got proper speech 1 year and it was doing him good but we had to move and start all over and from then on it was downhill. Not being able to speak and tell you whats wrong makes him very frustrated. It sparked off many behavior issues. Lots of tantrums that included biting,kicking,pinching,scratching. It has even escalated to punching walls. He even tries to get away from us and has. He will just get up and run when you are sitting together and other times he just plan tries to sneak out of the house. No matter when or what time it is. He never sleeps either. And if I go to sleep he wrecks the house. One time we had hidden donuts from him because he would just take them all and what he didn't eat he would smash everywhere. So this time we hid them in the oven and he woke up in the morning and went out to the kitchen and cooked the donuts. I have tried and tried many years now to get him in home therapy to help with his behavior and trying to leave all the time. We've tried meds and none of them ever worked for him. I don't understand why I can't get any help. I am always told I will get it but it has never happened yet and my boy is becoming a danger to himself and others with every passing year. I am always getting phone calls from school. Telling me something is wrong with Parker. UH YEAH maybe it's because has AUTISM. He has even started going to a school that specializes in Autism but they will still call me and tell me to pick him up and take him to the doctor because he holding his ears and crying. The nurse would look at him and see his ear red and say well he don't seem to have a fever but just in case you better take him to the doctor. Well his ear is red because he's has been holding them because of the screaming child in the back of the room. I have wasted so many precious learning days keeping him home for a fake ear infection. The doctors had even commented that they believe I should get a lawyer. I don't understand why every school he goes too I always end up right back where I started. With people who think they know about Autism. When they should in fact get a little more educated. There is only one answer here. My boy can't speak and is so very frustrated. All he needs is a little more speech and a lot less observation of something that is not there. I know my boy more than anyone. Even his own father has admitted I am better at caring for him. I can always narrow it down to whats bothering him or just know in seconds. I think the teachers and nurses should be educated by the parents that live with it everyday. There is so much more I can tell you about my boy. There are so many good things about him too. One thing he has going for him is he a an adorable red head. He has worked with a computer since before 2 and he doesn't even type. I don't know how he does it. His favorite website is YouTube. He watches clips of his favorite movies and shows. He also watches ceiling fan videos and school buses backing up. What people put on YouTube is so weird. But I am grateful for those people that seem to have nothing else to do because they give my boy hours of entertainment. You should hear his laugh. He can laugh for 5 minutes straight without stopping to breathe. He gets the hiccups a lot too. If you ever have any questions about Autism or maybe it's symptoms that you may notice with a loved one don't hesitate to ask me. I love to help others go in the right direction. The younger the better. Thanks for reading my blog about caring for a person with Autism. There is still so much more I can tell you but it would take me hours and hours.
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